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I saw a few posts that encouraged me to start this, so welcome!
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This is a blog about the treatment of Moyamoya disease and the options that are available to you. The goal is to give you information about the disease so YOU can make an informed decision. This blog is NOT intended as medical advice, you will want to stick with the professionals for that!
3 comments:
I left you a comment a few months ago when I was first diagnosed... THANK YOU for stating the facts- it is refreshing to see someone that is presenting the facts and offering support for the patients that have not had surgery. I am absolutely interested in helping in any way I can to get a "Non Surgery Support" group together! THANK YOU SO VERY MUCH!
PS- Just let me know if there is anything I can do to help you! :) -It is really a shame that the only promiment "resource" for info and support has been a board that is so very one-sided in the opionion/thinking. People need to make informed decisions on their care, not just the views of that particular group of people...
~ Jen
have it and have not clue how to deal with it. its been 2years since i was diagnoised..........any body got any advise for me
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