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There are a few sites that are dedicated to the Moyamoya disease and I wanted to offer some alternative information that is not being encouraged in those locations.
http://www.moyamoya.com This is the site with the most information and a very active discussion forum but a fair warning to anyone interested in participating at that site. If you are not having immediate surgery you will be chastised and told you are crazy or don't love your family member with the moyamoya syndrome.
I hope to create an alternative site with full access for all members to write their own articles, publish them and participate in a more open atmosphere, free from personal attacks.
This is NOT to say that surgery is not a GOOD and VIABLE option for everyone with MMD (Moyamoya Disease) but that is not the ONLY option.
I will provide links to the absolutely latest studies which show the up to date figures about this disease, how folks are being treated and what their results are!! I believe that you should be able to make an INFORMED decision and I wish you the very best on your journey!
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Forgive me for asking, but I don't see anywhere in this article that mentions Dr. Fukushima's expertise with moyamoya. By all appearances he's a brilliant, very experienced neurosurgeon but, again, I must be missing the part that details his moyamoya experience. Any input would be appreciated. Thanks!
I will have hula girl try to send you more information, Dr Fukushima did HER moyamoya surgery!
The technique that they are using for the MCA bypass was created by Dr Fukushima and has been used for various illnessess including MM.
I hope that helps?
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